What treatment has been effective for your bladder cancer? Submit Your Comment Comment from: December 01 Four years ago I awoke to urinate at 2 am and passed bloody urine and many blood clots. I spoke to a urologist few hours later. I saw him next day for cystoscopy and a stalked-type cancer tumor was seen.
It was excised following week in outpatient procedure and BCG treatment was started once a week for 6 wks. I had no side effects. Cytology tests on urine showed positive cancer cells at few months' post-operation and post-BCG treatments.
Specialized scans of the urinary tract and kidneys were negative. I am a 75 year old male, no family history of bladder cancer , and always very physically active.
My original episode of bloody urine was preceded the night before by my usual racquetball night. The surgeon and I both feel this was lucky because the vigorous exercise probably instigated the bleed. I could have not seen any symptom for many months had I not been running around that night. Abby, Male Caregiver Published: July 15 My husband had bladder cancer and removal of bladder.
All cancer removed, no chemotherapy or radiation was needed. The only thing that is alarming is, the urine smells strongly and just bad and he runs a fever. After antibiotics, odor goes away totally. Husband's surgery was in January July 23 I had heavy blood in my urine for a week before finally going to a doctor in the fall of when I reached a point of total blockage.
A cysto showed a tumor, which was removed a month later and diagnosed as a superficial cancer. The doctor thought it had all been removed, but a biopsy several weeks later showed cancer cells remaining.
I started six weeks of BCG, which I was told is very effective and it worked for me. Only two of the treatments gave me minor side effects that didn't last beyond the day of treatment. Another biopsy in the hospital a few weeks after the last treatment didn't show any remaining cancer cells. I had a cystoscopy every three months for a year after the last BCG treatment, and then every four months for another year. I'm now on a six month cysto and annual CT scan schedule for another two and a half years, and I have been cancer free so far.
I know it can recur, but BCG worked very well for me, as it does for countless others. I'm 75 and had ovarian cancer many years ago. I'm keeping my fingers crossed the bladder cancer doesn't recur. I have other medical issues and deal with things one at a time. I don't dwell on it and can't spend my life worrying about it. Several medical professionals told me that BCG is highly effective and can be used repeatedly, so I trust it will work for me again if there's a recurrence.
Obviously, I hope that won't be necessary, but it beats most of the alternatives. July 05 I had bladder cancer in , I now have a urostomy bag. You never really get used to it but as everyone says at least you are still here. They tell you that you can have a normal sex life, well, sex still hurts. And when I go to my general physician they don't have a clue what they are dealing with so if I have a problem I have to go to the accident and emergency, but again as everyone says at least you are still here!
December 02 March I found I had bladder cancer. After procedure it retuned 9 months later. It returned again in 9 months. Started chemo and it came back in 3 years.
Procedure and chemo again it came back in 2 years. Bob, Male Patient Published: September 26 I had a cystoscopy done and the doctor did not find anything, and said that I needed a dilation.
I went in for a dilation of urethra and doctor found tumor. A month later, he goes back to get it and it is gone. I'm having terrible back pain and having trouble with the flow. The doctor is marking as a urinary tract infection UTI.
But he does not want to see me for 6 months. May 12 I have a bladder carcinoma my doctor advised me a total removal of my bladder. June 24 My husband was diagnosed with bladder cancer two days ago. He had a tumor removed, and it was malignant. The doctor will go back into his bladder in two weeks to make sure he got all of the tumor and to do scrapings of the bladder wall to make sure it hasn't spread into the bladder lining.
In the meantime, my husband wants to sleep all the time. Scrap, Male Patient Published: June 14 I am a 30 year old male now. At 28 I found out I had bladder cancer after an ER trip with blood in urine and blood clots with massive lower back pain. For now a year and a half I have had a constant battle. My last surgery was 3 months ago and 2 days ago I found out I have 6 more tumors that have grown since.
I have had a wide array of bladder spasms ranging from massive pain to barely feeling it and have also had a constant lower back pain since my first surgery. My bladder is now twice the size it was and is weak and flabby so I retain urine in excess of cc's at any given time. I have had urodynamics testing which told them that my bladder is very weak and at that time I was retaining over cc's of urine.
Emotionally and mentally this has taken one heck of a toll on me.